My Odyssey

Odyssey Camp Co · Adventure Stories · August 2024

They told me I couldn't go. I went anyway.

By Daryn Potgieter, Founder of Odyssey Camp Co · National Three Peaks Challenge, August 2024

I have Parkinson's disease. I was excluded from the challenge I'd trained for, paid for, and fundraised for, on the evening I was already on the train to the start line. I did it anyway. Independently. With a group who believed in me. On the 9th of August 2024. What happened on those mountains is something no exclusion letter can take away. And what came next, a children's book series for kids with disabilities, born from those summits, is something I never planned, but will never stop being grateful for.

Chapter one

The call that changed everything

There is a particular kind of cruelty in being told you are excluded from something you've already paid for, already prepared for, already given months of your life to, and being given no warning, no conversation, and no real reason that holds up.

I had signed up for the National Three Peaks Challenge. I'd paid the entrance fee. I'd raised well above the minimum fundraising target in just one month, every pound going to a charity I believed in. If I could have chosen freely, I would have raised every penny for Parkinson's UK, the charity that exists for people like me.

I'd been open about participating. It had been discussed in team meetings. People had sponsored me. People were proud of me.

And then I left my job. And then I was excluded from the challenge, not on the day I left, but on the evening I was already on the train to Chester, to start the next morning. The grounds: no longer an employee.

No one told me this was a rule when I signed up. No one told me when I asked, before I left, whether I could still participate. And then, with eight months of preparation behind me, I received the call.

The donations kept coming in. The training kept going. My Parkinson's hadn't got the memo about the exclusion. So I decided I hadn't either.

I spoke with the event organisers directly. Their position was clear: they had no issue with me taking part. But they were acting on behalf of their client and had to follow instructions.

I understood the mechanics. I didn't accept the outcome.

So I found my own place on the challenge. I joined a group of independent participants, booked my own travel, and set off on the 9th of August 2024, with Parkinson's disease in my nervous system, a borrowed Marathon des Sables backpack on my shoulders, and two young children at the station seeing me off.

That image, kneeling on the station floor, their arms around me, my wife's eyes telling me everything she couldn't say, is the one I carried with me up every mountain.


Hour 1

Ben Nevis · Scotland · 06:03

We left Fort William before six in the morning. The mountain was already visible from the street, vast, unhurried, entirely indifferent to what any of us were about to attempt.

Parkinson's affects balance. It affects coordination. On uneven terrain at altitude those effects don't announce themselves politely, they arrive in moments: a foot that lands slightly wrong, a hand that grips the pole harder than intended, a pause on the path to recalibrate that no one else needs to take.

I took those pauses. And I kept going.

We stopped on a wooden bridge partway up, the whole of the Great Glen behind us, evening light catching the valley, and I thought: they tried to keep me from standing exactly here.

Ben Nevis | 10 Aug 2024 06:03 start · 9.33 miles · 6h 39m · 1,342m ascent · 2,181 calories

Hour 14

Scafell Pike · England · 22:16

Scafell Pike. Summit reached at 22:16 on the 10th of August. Headtorch on. Pitch darkness all around. The GPS shows 4.94 miles, 4 hours and 35 minutes, 906 metres of ascent, started at 20:02, which means we were climbing England's highest mountain entirely at night.

There is that photograph from that moment. Just me, lit by the headtorch, looking directly at the camera. No summit euphoria. No arms raised. Just a face that has been moving for sixteen hours, that has a disease that never sleeps, that is somewhere on the side of a mountain in the dark, continuing.

Parkinson's doesn't pause for mountain stages. Neither did I.

Scafell Pike | 10 Aug 2024 20:02 start (night climb) · 4.94 miles · 4h 35m · 906m ascent · 1,713 calories

Hour 24

Snowdon · Wales · 06:21

By Snowdon, something had shifted. Not the body, the body was doing what it always does after two mountains and a night of driving between countries: negotiating, protesting, continuing anyway.

Snowdon was where I understood something about Parkinson's and about challenge that I'd been building towards without knowing it: the disease is not the obstacle. The disease is part of the story. And the story is: I went anyway.

Snowdon | 11 Aug 2024 06:21 start · 2.96 miles · 1h 42m · 247m ascent · 562 calories

The finish

What it means

I didn't complete the Three Peaks in the way the traditional rules define completion. My Parkinson's placed real limits on parts of the challenge. I made decisions along the route that were about safety and sustainability, not defeat. And I stand by every one of them.

But I did something more important: I showed up. After being told I couldn't. After being excluded from the version of this challenge I had prepared for. After eight months of fundraising, training, and navigating a progressive neurological disease. I showed up. I moved. I finished.

The mountains didn't care about the politics. The disease didn't get a vote. I went.

The total across all three mountains: approximately 17 miles walked. Approximately 2,495 metres of ascent. Approximately 4,456 calories burned. One person with Parkinson's disease. 24 hours. Three countries. Three peaks.

No permission required. Just grit.


What came next

The mountain became a story. The story became a book.

When I came back from those mountains, I had something I hadn't had before: proof. Proof that a body that doesn't always cooperate, that shakes and stumbles and needs extra time, can still go somewhere extraordinary.

My children were with me at the start. And when I came back, I wanted to give them, and every child like them, every child who has ever been told their path is harder, slower, quieter, something they could hold.

If you have completed the National Three Peaks Challenge yourself, or are shopping for someone who has, Odyssey Camp & Co. makes garment-dyed National Three Peaks T-shirts from £24.99, and a Personalised Completion Canvas Print with your summit dates.

Now available on Amazon Kindle

The Mountain Didn't Know I Was Different

Part of the 'They Didn't Know I Was Different' Series · by Benjamin Samuel Potgieter

A children's story about self-belief, resilience, and finding strength in your own way. This isn't a story about being fixed. It's a story about belonging, courage, and self-determination.

  • Book 1The Mountain Didn't Know I Was Different, outdoor adventure and self-belief
  • Book 2The Classroom Didn't Know I Was Different, (the wind inside me) ADHD, inclusive friendships and belonging
  • Book 3The Sea Didn't Know I Was Different, outdoor adventure and mental well being
  • Book 4The Classroom Didn't Know I Was Different, (the storm inside me) coping mechanisms for anxiety

Read on Amazon →


To the reader

If you're living with Parkinson's, or anything else that changes the plan.

I am not telling you to climb a mountain. I am not telling you to push through pain or ignore your limits.

What I am telling you is this: the disease does not get to decide what you attempt. It only gets to influence how you do it. And sometimes, often, the how is the whole point.

What's your challenge?

Daryn Potgieter
Founder, Odyssey Camp Co
Author, the 'They Didn't Know I Was Different' children's book series
Ben Nevis · Scafell Pike · Snowdon | 9-11 August 2024